breathing episodes

Collin's due date is approaching, and we are starting to get a little antsy about bringing him home.. But, unfortunately,  Last night Collin had a series of breathing episodes, and it was decided that he be put back on the cannula.  So, this will hold us back a bit longer..But, like we've always said he is in the best place he can be!  Collin does what Collin wants, or doesn't want to do.. he is very much on his own time line and continues to amaze us with his progress. But, he occasionally has to remind us, he's still not quite ready!

He was put back on a very low setting (25 ml pressure, running about 50 % oxygen right now).   He was off cannula with a flat bed and taken off caffeine for about 4 or 5 days and did pretty good, but now he is back on cannula with an inclined bed, but still no caffeine.  We think the reason for the events is due to his need for caffeine, but he really needs to learn to live without it! So, they gave him the other stuff back in hopes that it will take that extra edge off and get him over the hump. Hopefully, getting the caffeine totally out of his system.  Today Collin was also given a diuretic to get rid of any possible extra fluid.  It is common with his chronic lung disease to have some fluid build up and pressure around his lungs, which could be another reason for his apnea episodes.  Just another measure they are taking to make breathing easier for him.  Also, he's been having more frequent awake time, and the nurses suggested that he was getting a little "bored", so we brought in his little bouncy chair!  He seemed to really like the music and vibrations.  This picture was taken early last night, before they put the cannula back on..

Things coming up.. later this week Collin will have another eye exam to check on continued growth/progress. and sometime soon Collin will be getting an MRI to get a much clearer look at his little noggin!  They did multiple ultrasounds of his head in the beginning of our journey, but now that he is a little older they would like to get some in depth images and see what really went on in there when he had his hemorrhage.  We have no idea what the results could tell us, but it may give us some answers as to how it could effect Collin as he grows and develops.